Resources

NORTHWESTERN LINKS

NMH Comprehensive Transplant Center

Transplant Village

Northwestern Living Donor Team (Kidney):  nmlivingdonor@nm.org

Northwestern Living Donor Team (Liver):  LClark@nm.org

THE LIVING DONATION EXPERIENCE

Understanding Living Kidney Donation

Understanding Living Kidney Donation Voucher Programs

The Living Donor Experience

Paired Kidney Donation Explanation

FINANCIAL SUPPORT FOR DONORS

NKF Financial Toolkit  This simple worksheet will help you estimate the cost of donation and help you figure out what expenses will need to be considered/reimbursed.

National Living Donor Assistance Center (NLDAC).  When it comes to getting reimbursed for non-medical expenses related to donation, this is the best place to get started.  This video briefly describes this program which is available to some but not all donors.

National Kidney Registry provides the gold standard in protections for living donors.  If your transplant center is affiliated with the NKR, Donor Shield will be available to you.

Alliance for Paired Donation provide significant reimbursements for lost wages and other expenses.  You can ask your transplant center if they are affiliated with the Alliance to determine if benefits are available to you.

National Foundation for Transplants offers fundraising assistance for living donors.

American Living Donor Fund is a non-profit dedicated to helping donors with financial hardships related to donation.

The National Kidney Foundation has an extensive resource page for living donors.

American Society of Transplantation Toolkits:  This website has links to toolkits for donors that address a wide range of topics.

LIVING DONOR COMMUNITIES

The National Kidney Donation Organization (NKDO)

One Kidney Clubs

Living Donors Online

Living Kidney Donors Support Group

Kidney Donor Athletes

 

LINKS THAT MAY INTEREST NON-DIRECTED DONATION

Why we donated kidneys to strangers

Dylan Matthews- Why I donated a kidney to a stranger

Patty’s non-directed donation story

Sue’s non-directed donation story

Dr. Abigail Marsh on non-directed donation

What makes a person donate a kidney to a stranger (TedX)

Demonstration of a non-directed donor starting a chain

The Power of non-directed donation (story)

NKR Family Voucher Program

 

ORGAN DONATION PODCASTS

Donor Diaries

One is Enough

Let’s Talk Hope (Gift of Hope)

Freakonomics with Al Roth

Freakonomics with Ned Brooks

NKF- the Journey Continues

Extraordinary Empathy with Abby Marsh

Psychopaths and Superheroes (Vox)

BOOKS ABOUT ORGAN DONATION

100 Questions to ask before donating a kidney

The Insider’s Guide to Living Kidney Donation

Because of Organ Donation

Kidney to Share 

The Reluctant Donor

The Caregiver’s Guidebook

BLOGS AND PERSONAL ACCOUNTS

Could You be a Kidney Donor?

Shared Parts

Supposed to Be Me

What to Expect if you give the greatest gift

Elaine’s summary of her donation surgery

Elaine 1 year post donation

Diane Hall Donor Website